Fernanda asks employers to put themselves in the caregivers’ shoes; it is really hard to balance care and work.
Transcript
Please understand that, even though your life, maybe that you’ve never had to take care of anybody, that it is extremely hard to take care of somebody and have a job. I’m not asking that employers say, “Okay, you’ve got to take care of somebody, so you can have all this time off.” No. I’ve never been like that. Whatever time I’ve had off, I’ve worked it in. If I’ve taken an extra half an hour at an appointment, I have worked in that half an hour. I’ll come back in the evening and I’ll finish my work. I try to leave everything. A lot of times I can—I used to go in at 2 o’clock in the morning while mom was in hospital. I’m not asking for freebies, but I think the people that have a job and have to run people to appointments because there’s no one else—I mean just nobody else—and you can’t put them in a taxi or expect them to catch a bus because they’re too sick to do that, or they don’t know the language… is please have some understanding what’s it’s like. Because when I was told after my dad died and my mother and […] they told me that my mom had about two weeks to live if she didn’t go back on dialysis, and I was told—and not by the employer—that business is business and no one really cares, that was a big shock. Because you know what? It’s true. As long as people, businesses, are out there to make money and everything, and so it’s just really, really hard.
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- Travelling, holidays and respite – FernandaWhen Fernanda is hiking in the mountains, there is no cell reception. Although she feels guilty, being unavailable is a relief.
- Hospitals and facilities – FernandaFernanda found good support from the client advocacy office, when her mother was in great pain without any specific treatment for it.
- Challenging emotions and feelings – Fernanda (2)When Fernanda’s mother went into a facility, Fernanda felt like she was betraying and abandoning her.
- Challenging emotions and feelings – FernandaFernanda’s social worker was a big help: she assured her that her negative feelings were normal.
- Effects of care recipients’ behaviour – FernandaFernanda appreciates her mother’s endurance and attitude. Nonetheless, it is sometimes difficult when she relies mostly on Fernanda and refuses other help that is offered to her.
- Caring for yourself – FernandaFernanda learned that you need to have time for fun. Still, it can be hard to take time for herself.
- Impact on professional life and career – FernandaFernanda asks employers to put themselves in the caregivers’ shoes; it is really hard to balance care and work.
- Impact on health – FernandaA social worker helped Fernanda find the skills she needs to cope with her situation.
- Providing support – FernandaThe toughest thing that Fernanda did was tell the doctors that she wasn’t able to care for her mother anymore at home.
- Society and caregiving – FernandaFernanda thinks it would be wonderful if people knew more about what it means to be a caregiver.